Anthony

Today Anthony is going in for a Bronchoscopy. You can read more about it here. About two weeks ago he had a routine swallow study done to show his progress in oral and motor therapy. It showed that he has not had any improvement with aspiration since the intial swallow study back in October 2008. Because of this his therapist had to discontinue treatment at this time, and along with the pulmonologist we decided it was best to do a Bronchooscopy and see if there is something physically causing the aspiration (versus something neurologically). We hope to get some answers today that will explain his aspiration. You can read more about Aspiration here.

On another note, Anthony got his Spio vest last week thanks to Grandma and Papa! We love it!!! If you know anyone that has a child with Sensory Integration Disorder I highly recommend it!! We can now go out and he is calm and not overwhelmed. Read more about it here.
Thanks for stopping by! Please keep us in your prayers today!!

5 question friday

Quick run down of the rules...copy and paste the following questions to your blog, answer them, grab the MckLinky BlogHop code and link up! I'd also be very grateful, appreciative, forever indebted, honored, etc...if you'd link back to the creator of this blog carnival, Mama M.(the 5 Question Friday Carni!)! Oh, and if you don't have a blog, but want to join in, just leave me your answers in my comments!



1. What celebrity have you been told you look like?
I've never been told I look like a celebrity

2. What is your all time favorite movie, any special reason why?
Steel Magnolias. I don't know why I love that movie but I do. I could watch it all the time.
3. Since we're talkin' movies...Popcorn: overrated, underrated, or 'bout right?
Overrated
4. Are you a glass half empty or half full kinda person?
half empty most of the time. i need to change that
5. What perfume/cologne do you wear?
Right now I love Victoria Secrets Fresh and Clean spray I believe. I change them often

Sensory Integration Disorder

I have not blogged in a while and for you 3 people who read my blog, I apologize. I have been so busy with our trip to Alabama, then school starting that I am just now catching up on this.

We have started a new diet right now. I'm reading a book called NDD by Dr. Sears. I started that diet on Wednesday and I love it! It is almost organic, but not quite, and we can still eat a lot of our favorite foods. This has made a big difference on the kids moods (and mine:)) I recommend that book to everyone who has or is planning on having a child, it is awesome what you learn.

On to the title of this post, Sensory Integration Disorder, Anthony was just diagnosed yesterday with this. I'm still learning about it, and I'm not quite sure yet what this means for him and us, but I'm hoping to find other moms out there that are familiar with it. We will began therapy within the month two times a week. So we are up to five therapy sessions a week, each are one hour long. I'm ready to get that going and see what happens. Everything I find says that he could be diagnosed with ADHD or Autisium when he gets older, so I'm trying to get as much information now about those two as possible. If any of you know anyone who has this disorder or is aware of it, please ask them to get in touch with me. I need all the information I can get right now, such as support groups, books, tools, toys, etc.

If you have any questions or comments please leave them. I'll try to post pictures tonight or tomorrow of the kids first few days of school.

Not At All Wordless Wednesday

This post has been in my mind for a few nights, but I've never sat down to type it. These last few days have been hard on me to say the least. Hell this summer has been hard on me! I don't know what more I can take, or what I need to do to change things, but I need to do something.

Speed Racer is gone with his dad and has been since June 4, this is the longest he has been gone and it is killing me. I'm so anxious all the time, and I'm just ready for him to be home, he will be this Saturday though and I can not wait. I got to see him a few weeks ago for the day. I flew into St.Louis for a few days because my uncle was in ICU. It was nice to visit with Speed Racer and my family, but not under those circumstances. I am glad I was able to be there in St.Louis with my family during that time. My uncle did pass away the night I flew home, while I was on the plane. I was ready to be home with my babies, and had made the decision to go ahead and go home early. I could not bear to see my uncle in an ICU bed any longer. It was killing me. I'm sad that I wasn't there after he passed to help support my family, but I'm also thankful I wasn't there when he passed, I don't know that I could have handled that. My grandmother (who I was named after, my dad's mom) also passed away while I was on my way home from seeing her when she was in the ICU in 2004. Both of them waited until I left the hospital and was heading home, to leave this place. I have been told that your loved ones do that with people that they know would not be able to handle them passing, I don't know if this is true or not, but I would like to think that is what happened. None the less I still have the regret that I didn't attend either funeral, and that I wasn't there when they passed. My uncle's passing made me realize that life is short, and that you are not guaranteed another day. He was not 100% healthy by no means, but he was living pretty well until about a week before he passed, and before we knew it he was in Cardiac arrest and never came out of it. It was a shock to me, and I'm still confused. How could it have happened so fast? How did no one notice that he was so sick? The doctor's had to have none he was getting close to this. I don't know. I'm just confused, and sad. I am not ready to loose either one of my parents, and to think that my three cousins who are all around my age, had to go through this hurts. I hate it! I think everyday about the family that he left behind, and how we will never have another memory with him, it hurts.

Monkey also has me kind of down in the dumps, not him, but his situation. I am tired of doctors, I'm tired of needles, I'm tired of xrays, I'm tired of tests, I'm tired of bottles, I'm tired of therapies. I'm just tired. I spend way to much time at the hospital or therapy with him, that he has no clue what a normal childhood is. He shouldn't have to have his blood drawn every other month, and have tests after tests. His poor little face the second he notices we are in the doctor's office is heartbreaking. He hates going! I hate putting him through all of this, but I have no choice. It is so aggravating to go somewhere and talk to someone about him. I'm so tired of hearing "Oh sweetie he is fine! They won't find anything wrong with him, look at how healthy he is! He's walking and talking that's great!" No it's not, and yes he is sick. YOU just can't tell. Just because he walks doesn't mean he doesn't have a left side weakness. Just because he eats normally and drinks from a sippy cup doesn't mean he doesn't choke and have to have thick it in every cup. Just because he isn't on high blood pressure medicine doesn't mean it isn't high. Just because he isn't purple at the moment, doesn't mean he won't be in an hour. Just because he is not terrible skinny, doesn't mean he is growing right. Just because he throws a tantrum like a normal two year old boy, doesn't mean he is 100% well. He isn't. He is sick. He has something wrong, and until I get a definite diagnosis I will not stop! I know that since I'm young people think I have no clue what I'm talking about, but I do. I've known since the moment I found out he was not growing at 33 weeks that something was wrong, when I lost weight at the end of my pregnancy, when he was so small at birth, breathing problems, pneumonia, bronchitis, weakness, stomach problems, fevers, temper, aspiration, everything. I knew with every symptom something is wrong with him. Yes he is bright eyed and very active, but it is the things that you can not see. It the extra things that I have to do to make his life easier. Those you don't see in the pictures or in person. So I'm tired of hearing "oh he's fine", etc. The truth is he is not. Some of his most recent tests have come back fine. However his AST levels were elevated and I am hoping to know more about this soon. We still have a lot of tests to get back, but so far it's ok news. I'm just down in the dumps if you can't tell. I hate that he is going through this, and I wish I could take it all away, but I can't. Please keep him in your prayers. We both need it right now.

I think I'm done complaining and rambling but I needed to get that out.

The Winner IS.......

The winner for the drawings are as follows:

A: Joyce

B:Leigh

C:Heather

Make sure to get with me about where to send the prizes. My email address is ashleysaper@gmail.com! Thanks so much for playing, and the theme we chose is Curious George.

Blog Hop!

3 Things you didn't know about me

1. I am a very picky mother. My children are sheltered to say the least. I do not allow television Monday through Friday for my children, and candy is very seldomly allowed either. I even dislike it on holidays. I have no idea why I am so stuck in my ways about these things, but I'm glad that I am my kids find other things to do rather than sit on the couch and watch television.
2. I do not eat breakfast, and if I do it's not your traditional breakfast. It's something quick like a candy bar, or banana, or even a plate of dinner reheated from the night before. ha! But yes my kids do eat a good breakfast.
3. I'm very good with numbers, I do a very good job balancing checkbooks, and preparing a budget. Now sticking to that budget, no way! But I can do someone else's no problem!! I would love to be an accountant. But I do have a little OCD when it comes to numbers. It's odd and I can't really explain it but I am always adding or pair numbers together. It's weird.

Be sure to join in on the Blog Hop!! have a great Tuesday. Make sure and enter my drawing it ends Today around 11am!! It is a few posts down.

Not Me! Monday

If you would like to join in click the Not Me! Button and begin! MckMama is hosting and it is always fun to see what others moms did not do!

I did not Allow Princess to wear a gymnastics outfit and cowboy boots to swim in last night.
I did not go to garage sales on Saturday and buy two of these wonderful cars so that we would have a little less fighting in the yard. Nope Not ME!!
Also while out at said garage sale I did not buy a baby sling when my child is almost two and expect him to be a happy monkey in it! No way! I also did not tell my neighbor what I had not done and then get exicited when she offered to loan me her very pretty one instead. I most certaintly did not borrow it for the next few wekks and put monkey in it first thing this morning. Oh and I do not plan on taking it to the doctor with us today! Nope Not ME!!

Have a great Monday and a Wonderful week, we are off to the doctor. Don't forget to enter in the giveaway below. It ends tomorrow!!! Good luck!